Quality-of-life measures in chronic diseases of childhood by Christine Eiser

Cover of: Quality-of-life measures in chronic diseases of childhood | Christine Eiser

Published by NCCHTA in Southampton .

Written in English

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Edition Notes

On cover: Health Technology Assessment NHS R&D HTA Programme.

Book details

Other titlesQuality of life measures in chronic diseases of childhood.
StatementC. Eiser, R. Morse.
SeriesHealth Technology Assessment -- Vol. 5: No. 4
ContributionsMorse, R., National Co-ordinating Centre for HTA (Great Britain)
The Physical Object
Pagination156p.
Number of Pages156
ID Numbers
Open LibraryOL18798206M

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Quality-of-life Measures in Chronic Diseases of Childhood - PubMed Forty-three measures were identified (19 generic and 24 disease-specific). Sixteen measures allowed for completion by children and parent/caregiver; seven only allowed for completion by a proxy, and the remainder (n = 17) allowed only for child by: Quality-of-life measures in chronic diseases of childhood.

SCOPE OF THE REPORT This report is concerned with the evaluation of measures broadly designed to measure quality of life (QoL) in children and adolescents, either by self-report or proxy raters.

Request PDF | Quality of Life Measures in Chronic Diseases of Childhood | This report is concerned with the evaluation of measures broadly designed to measure quality of life (QoL) in children and.

Quality of life of children with chronic illnesses: A Review of the Literature. Eiser, C. and Morse, R. () Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5,   Quality-of-life measures in chronic diseases in childhood.

Special supplement on papers and discussions presented at the international workshop on assessing health-related quality of life in children with cancer. Int J Cancer S12(1). by: 6. The Handbook of Disease Burdens and Quality of Life Measures is the first comprehensive reference to these instruments and their findings on an international scale.

The Handbook features in-depth reviews of disability-adjusted life years (DALYs), quality-adjusted life years (QALYs), quality of life and financial measures for over diseases.

Frequent and lengthy hospitalisations, painful treatments, and lack of certainty about the future may all compromise the quality of life of child and family.

Current ability to treat children with. disease Kidney Disease Quality of Life (KDQOL) (Hays et al., ) Good results for the reliability of the instrument The instrument correlated highly with patients’ global assessments of restrictions on their lives (r = ).

Patients with L V dysfunction participating in several studies (83; 84% males) Minnesota Living with Heart Failure. People with chronic illnesses often develop theories about where their illness came from.

These theories about origins of the illness include stress, physical injury, disease-causing bacteria, and God's will. Self-blame for chronic illness is widespread. Significant increases in survival have been reported for a wide range of chronic diseases of childhood. These improvements have generally been achieved through the use of increasingly aggressive treatment protocols, prompting some to question the relationship between quantity and quality of survival.

Frequent and lengthy hospitalisations, painful treatments, and lack of certainty about the Cited by:   Measuring Health-Related Quality of Life in Children and Adolescents: Implications for Research and Practice: in children and adolescents with a special focus on chronic health conditions.

The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need. Progress in the assessment of quality of life (QoL) measures for children and their value in clinical practice are considered. The most parsimonious approach to assessment includes modular assessment of generic and disease-specific QoL.

Differences occur between child and parent proxy ratings, so it is recommended that ratings from multiple observers are made where by: To measure health‐related quality of life (HRQOL) in children and adolescents ages 5–18 years.

This measure consists of child report (ages 10–18 years) and 2 versions of parent‐proxy report (ages 5–18 years) of the child's HRQOL. It can be used with healthy children and those with both acute and chronic health conditions.

Health-related quality of life (HRQOL) is an individual’s or a group’s perceived physical and mental health over time. On this site, find general information about health-related quality of life, such as HRQOL surveillance and its role in public health practice. Consequently questions are increasingly raised about the quality of life (QOL) of children with chronic disease.

Efforts to measure child QOL have proved complex but a number of generic and disease-specific measures have been reported [ 4 ]. A comparative study of impairment of quality of life in children with skin disease and children with other chronic childhood diseases.

Br J Dermatol. ; (1)– doi: /jx [Google Scholar]Cited by:   In Figure 7, the authors compared the health-related quality of life (HRQOL) of paediatric and adult patients with SCD to that of patients with other chronic diseases, including cystic fibrosis. Quality of life has been used as a synonym for a subject-centred or individually appraised perspective on health.

Despite the increase in quality of life research in adults, quality of life in children is relatively neglected. While generic measures begin to emerge now, methods to assess the quality of life of children with chronic conditions are still in development.

Books for Children with Chronic Illness Good resources for school-aged children coping with chronic illnesses and conditions such as diabetes, asthma, AIDS, sickle-cell anemia, epilepsy, autism, ADHD, Crohn's disease, cystic fibrosis, cancer, celiac disease, renal disease, etc.

Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health.

This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent cturer: Routledge.

The purpose of the present study was to examine the associations of one specific and multiple chronic diseases with health‐related quality of life and self‐rated health (measured using the 5‐level EQ‐5D version) in three age groups: young (21–44 years), middle‐aged (45–64 years), and older adults (≥65 years).

cators, asdefined by WHO, measure the consequences of diseases and injuries and their implications for the lives of individuals (box 6-A) (24,1 16,). Health-related quality-of-life indicators meas-ure subjective judgments about states of health or disease (19,).2 An example of a quality-of-life indicator is self-perceived health   Inthe Centers for Disease Control and Prevention (CDC) and the Council of State and Territorial Epidemiologists developed a set of 73 chronic disease indicators that later was expanded to 97 cross-cutting indicators for use by jurisdictions at different levels to “uniformly define, collect, and report chronic disease data that are.

CHQ. The CHQ is a multidimensional generic measure of HRQL that can be used with children as young as 5 years. 9 We used the item parent-completed CHQ (CHQ-PF50), which measures 11 domains of health.

Physical domains include the following: physical functioning, role/social limitations as a result of physical health, bodily pain/discomfort, and general health perception. Impact of upper respiratory allergic diseases on quality of life.

J Allergy Clin Immunol ;(2 Pt 2):S– 31 French DJ, Christie MJ, Sowden AJ. The repro- ducibility of the Childhood Asthma Question- naires: measures of quality of life for children with asthma aged 4–16 years.

Qual Life Res ;– 32 Landgraf JM, Abetz LN. A chronic disease is an illness that is not contagious, usually of long duration, progresses slowly, and is typically a result of genetics, environment, or poor lifestyle.

1 Inmore than 28 million (57%) of all global deaths were caused by chronic disease. 2 This number increased to 36 million (63%) of all global deaths in 3 and 39 million (72%) of all global deaths in 4 ().

In this study they assessed clinical markers associated with a significantly impaired quality of life in the five stages of chronic kidney disease. There is a need to develop strategies to more accurately identify ‘high risk’ CKD patients earlier in their disease who may benefit from preventive measures before complications occur.

This article is part of the Eurostat online publication Quality of life indicators, providing recent statistics on the quality of life in the European Union (EU).The publication presents a detailed analysis of many different dimensions of quality of life, complementing the indicator traditionally used as the measure of economic and social development, gross domestic product (GDP).

Children often have acute, short-term illnesses such as upper respiratory tract or ear infections, gastrointestinal illness with vomiting and diarrhea, or injury-related problems. However, some children develop chronic illness (lasting for years or even lifelong) as a result of genetic (inherited).

Quality of life evaluation in chronic illness across cultures: The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System and its use in India. In S. Chaturvedi, & P. Chandra (Eds.), Quality of Life in Health & Disease (pp. Malalur Printers. Around one in nine (%) people had two chronic conditions inwhile % had three or more chronic conditions.

One in five Australians (%) reported mental health and behavioural conditions, which was the most commonly reported chronic condition in for both males and females.

Back problems (%) and Arthritis (%) were the next most commonly reported chronic. Diabetes is a chronic health problem with devastating, yet preventable consequences. It is characterized by high blood glucose levels resulting from defects in insulin production, insulin action, or both.1,2 Globally, rates of type 2 diabetes were million in ,3 the number of people with diabetes.

We unpack how childhood trauma may lead to chronic illness in adulthood. of the leading causes of death in adults,” such as heart disease, cancer, chronic lung criteria used to measure.

Quality of life on dialysis Written by DaVita Social Worker, Dana VonAustin, LCSW The only person who can measure your quality of life is you. Quality of life is defined as: the amount of enjoyment and satisfaction that a person gets from his/her daily routine.

The Quality of Life Scale (QOLS), created originally by American psychologist John Flanagan in the 's, has been adapted for use in chronic illness groups. This paper reviews the development and psychometric testing of the QOLS.

A descriptive review of the published literature was undertaken and findings summarized in the frequently asked questions format. importance of evaluating and improving people’s quality of life.

When quality of life is considered in the context of health and disease, it is commonly referred to as health-related quality of life (HRQoL) to differentiate it from other aspects of quality of life. Chronic disease affects health and quality of life, but it is also a major driver of health care costs and has a related impact on business such as absenteeism and presenteeism.

According to the Centers for Disease Control and Prevention (CDC), chronic disease accounts for approximately 75 percent of the nation's aggregate health care spending. More than 26 million Americans have Chronic Kidney Disease (CKD) and millions more are not aware they are at risk for the disease, which often is caused by diabetes and.

hypertension. Individuals with a family history of kidney failure are also at risk. CKD decreases quality of life and increases health care expenditures. It now ranks as.

According to the World Health Organization report (WHO, ), it has been estimated that, inapproximately 60% of the million total reported deaths in the world and approximately 46% of the global burden of disease is attributable to chronic diseases and cardiovascular disease in caused by noncommunicable diseases dominate the mortality statistics in five out of.

chronic conditions substantially and negatively affect the qual-ity of life of adult survivors of childhood cancer. In particular, the number and severity of chronic conditions are largely re-sponsible for poor health-related quality of life as estimated with utility scores, not original cancer diagnosis or treatment.Quality of life is an important concept in the field of international development since it allows development to be analyzed on a measure broader than standard of living.

Within development theory, however, there are varying ideas concerning what constitutes desirable change for a particular society, and the different ways that quality of life is defined by institutions therefore shapes how.people world-wide and is the most prevalent chronic disease in childhood.

High prevalence of childhood asthma observed during the last decades predicts the growing prevalence of asthma in the nearest future unless appropriate preventive measures are undertaken.

The Global Strategy for the prevention and control of noncommunicable.

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